My Story

by Stephanie Hoff

I inherited polycystic kidney disease (PKD), which has caused my kidney function to diminish gradually since PKD was diagnosed in 1994. I am now in Stage 5, the last stage of chronic kidney disease; on dialysis; and still hoping for a kidney transplant. I have been approved for one at Mayo Clinic, Rochester, Minnesota.

A kidney transplant would enable me to extend and enrich my life: to fulfill longed-for retirement plans, including contributing time and energy to church and community activities in Decorah; traveling; and pursuing other interests and goals that have been precluded by my declining health.

Approved for a kidney transplant at Mayo Clinic in 2022, I am listed on the national deceased donor transplant list (UNOS). However, because the wait for a deceased donor transplant is long and hopefully dialysis is only a temporary treatment, I am also pursuing a living-donor kidney transplant at Mayo. Willing family members volunteered and were tested but not approved. Thus, I am reaching out for your help, which can take many forms: prayers and positive support; sharing information in person or on social media about my search for a living kidney donor; and consideration by you or someone you know who might become a living kidney donor.

To find out more about becoming a living kidney donor, including paired donation, go to If you have questions or need more information at any time, you may contact the living donor transplant team at or call toll-free 866-227-1569. Thank you for helping me!